Stakeholder's Forum Information/Discussion Meeting Print

To ensure maximum involvement from all sectors during its preparatory phase, BBMRI has established a Stakeholder's Forum, which will assemble the input and requirements of the broad and heterogeneous stakeholder community of BBMRI, comprising patients, clinicians, funding organisations, associated project partners, industry, and users.

As part of a comprehensive consultation and engagement process, a BBMRI Stakeholder's Forum information and discussion meeting was held in Brussels.

Title: "Building a Research Infrastructure for European Bioabnks"
Venue: The Renaissance Hotel, Rue du Parnasse, Brussels
Date: Wednesday, September 16th, 2009

For a copy of the meeting report, click here

For a series of images from the event, click here

This event was designed for those who wish to know more about BBMRI and how they can contribute through the Stakeholder's Forum. Feedback and comments will be greatly welcomed from the broad spectrum of organisations and individuals attending.

For copies of presentations delivered during the meeting, see below. Click on the titles to link to a copy of the presentation.

Session 1 Presentations "BBMRI- The Power of Many"

1. Jean-Emmanuel Faure -  “The European Union actions for Research Infrastructures”
2. Eero Vuorio -  “BBMRI: Preparation Phase and European Context”
3. Kurt Zatloukal - “BBMRI: Towards Implementation”
4. Georges Dagher - “Funding and Financing”
5. Markus Perola - “Population-Based Biobanks in a Global Context”
6. Thomas Meitinger - “Overview on Participation of Disease-Related Biobanks”

Session 2 Presentations "Advancing Biobanking Through Collaboration"

1. Ulf Landegren -  " Gathering the tools for analysing biobank samples "
2. Jan-Eric Litton - "Database harmonisation and IT infrastructure"
3. David Cox - “International Biobanking: Opportunities and challenges for private-public collaboration”
4. Julie Corfield - “Collaboration in Biobanking: sustaining R&D activities of the Pharmaceutical Industry”

Session 3 Presentations "Providing an Ethical and Legal Platform"

1.  Fabrizia Bignami - "Biobanks:Patients' Role and Expectations"
2.  Martin Yuille -"Fair access: a practical approach to policy on access for European biobanking"
3.  Neil Formstone - "Biobanks: Patients' Inputs and Outcomes"
4.  Jasper Bovenberg - "BBMRI: Ethical, Legal and Societal Issues"

For more information contact Derick Mitchell, Executive Manager, BBMRI Stakeholder's Forum at This e-mail address is being protected from spambots. You need JavaScript enabled to view it